A personalized and holistic patient support program for better understanding of a rare skin condition

Supporting patients living with a rare disease

Patients living with a rare condition face specific challenges: scarceness of information resources, uncertainty, in addition to psychological and social effects of disease management. Healthcare providers often lack tools and resources to support their patients while offering the best treatment and follow-up. To support patients suffering from a rare skin condition characterized by painful flares, our client, a leading global life science company, wanted to build an effective Patient Support Program (PSP) capable of meeting multiple needs: empowering patients, keeping them engaged with
their treatment and understanding their condition better.